Home-Based Palliative Care

Building Operational Excellence

Inclusion of Advance Care Plans into Care Delivery

A palliative approach to care focuses on meeting a person’s and family’s complete needs – physical, psychosocial and spiritual – at all stages of a chronic progressive illness. Care can be provided at any time, not just in the last days of life. There are many options to where palliative and​ end of life care can be provided, in the home, hospital, long-term care facility or free-standing hospice.

An important part of home-based palliative care is including a patient’s values and wished in their care plan and delivery.

Advance care planning is a process, not just a document. It is an ongoing conversation that an individual has with their family and health care team about their wishes for future health and personal care. Ensuring that advance care plan wishes are reflected in an individuals’ care and influence what medical procedures they want and how care is delivery is vitally important to home-based palliative care. Health care providers can use this written information in emergency situations.  Before providing any treatments, health care providers must get informed consent from the individual or Substitute Decision Maker.  This requirement assures that individual’s health care decisions are fully informed.

Phase 1. Creating Palliative Care Experience Maps

The CHCA is hosting four workshops across Canada (B.C., AB, ON and PEI) to gain a better understanding of the detailed operational practices in four key priority areas in home-based palliative care:

  • Assessment and care planning
  • Inclusion of advance care plans into care delivery
  • Management of equipment supplies and medication
  • Effective communication strategies and tactics

Participants will create a Palliative Care Experience Map that visually shows the key processes, actions, relationships, communications and decisions that are necessary for individuals’ advance care plan wishes to be communicated and acted upon by their health care providers, significant others and substitute decision-makers.

Following the workshops, the CHCA will conduct an E-Delphi process to gain broader stakeholder input and consensus.  Our goal is to understand the fundamental operational processes, not create one standardized approach.  Each of the four Palliative Experience Maps will form the basis for the next phase of the project – the Call for Innovations in home-based palliative care, that will be launched in mid-August 2018.

Creating a Palliative Care Experience Map

On July 24, 2018 stakeholders from Alberta came together to discuss approaches needed to ensure a patient’s advance care plans (end-of-life wishes) are effectively translated into the planning and delivery of care.

Operational Innovations in Home-Based Palliative Care

Successful innovations featured at the 2018 CHCA Home Care Summits in Charlottetown PEI (Oct 1 & 2) and Vancouver BC (Oct 21 & 22).

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